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Home : Resources : Support Groups : Diseases and Conditions : Facial Differences


Apert Syndrome (1) Sticklers Syndrome (2)
Cleft Lip and Palate (18) Treacher Collins Syndrome (6)
Craniosynostosis (1)

International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
Birthmark Support Group
From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
Changing Faces
UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
Children's Craniofacial Association
Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
Crouzon's Bridge of Hope Foundation
Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.
FACES: The National Craniofacial Association
Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
Foundation for Faces of Children
Expert information for families and health care professionals about craniofacial conditions.
Let's Face It USA
A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
Moebius Syndrome
Moebius Syndrome support, information and resource site.
The Craniofacial Society of Great Britain and Ireland
Information about the society, which is a multidisciplinary forum for specialists.
The New Face Foundation
A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
XP Support Group
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
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