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A non-profit support group for the families and medical care providers of children and mature born with Congenital Diaphragmatic Hernia. http://www.cherubs-cdh.org
Contact a Family
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. http://www.cafamily.org.uk
Lymphangiomatosis and Gorham's Vanishing Bone Disease
Provides general information and a personal account, including pictures and X-rays. http://www.gorhams.dk
Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency. http://www.bh4.org
Patient support group for XLH, a genetic condition also known as X-Linked Hypophosphatemia, X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets. http://www.xlhnetwork.org/