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Home : Diseases and Conditions : Organizations


Anaphylaxis Foundation and Anaphylaxis Network of Canada
offers product alerts and registry for product recalls and research and advocacy data.
Canadian Organization for Rare Disorders
committed to the enhancement of the lives of all persons affected by rare disorders.
Global Fund to Fight AIDS, Tuberculosis, and Malaria
works to mitigate the impact caused by HIV/AIDS, tuberculosis, and malaria in countries of need.
Histiocytosis Association of America Virtual Offices
online support for patients with histiocytosis their family and friends.
International Immunocompromised Host Society
Offering a multidisciplinary forum for scientific and clinical interchange to improve management of Immunocompromised Patients.
International Society for the Study of Cough
Promotes research in cough and encourages the exchange of ideas and information.
Medsupport: Friends Supporting Friends
provides 24 hr. support on the net via forums, chats, information, newsletters and articles in text and real audio, pen pals, members stories, and our own television show.
Mia Hamm Foundation
supporting research of bone marrow diseases.
National Association for Down Syndrome (NADS)
news, resources, and scientific information related to down syndrome from NADS, a not-for-profit organization serving people in the Chicago metropolitan area.
National Pediculosis Association
national clearing house on head lice and scabies issues.
Nevus Network
support group for individuals with giant congenital nevi and their families.
Parent to Parent of Georgia, Inc.
provides support and information to parents who have a child with a disability or special health care need.
Pituitary Tumor Network Association
dedicated to support, pursue, encourage, promote, and, where possible, fund research on pituitary tumors in a sustained and full-time effort to find a cure for pituitary diseases.
Stevens Johnson Syndrome Foundation
provides medical communities and the public with information and support.
The American Hyperacusis Association
Dedicated to increasing public and professional awareness of hyperacusis and its diagnosis, evaluation, and management.
The Melungeon Health Education and Support Network
Dedicated to the health of Melungeon descendants who have one or more of the five major Mediterranean illnesses, including Behçet's Syndrome and Sarcoidosis.
The National Pancreas Foundatio
Committed to advancing education and research related to diseases of the pancreas, including pancreatitis and pancreatic cancer.
Transverse Myelitis Association
not-for-profit organization providing support to families affected by TM.
Wobblers Anonymouse
support group for those damaged by gentamicin. Symptoms include oscillopsia and loss of balance.
Worldwide Society of Wolfram Syndrome Families
support group for a rare disease.
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