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Children of the Moon
A portal site that provides an online community for children, teens and mature with xeroderma pigmentosum. http://www.moonchildren.com
Xeroderma Pigmentosum Society
Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. http://www.xps.org
XP Support Group
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions. http://www.xpsupportgroup.org.uk