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Home : Diseases and Conditions : Genetic Disorders : Cystic Fibrosis


Organizations (15)

A Wish for Wendy
Softball tournament benefiting Cystic Fibrosis research in honor of Wendy Carol Lipman who died 15 days after birth from cystic fibrosis.
About TOBI and the Management of Cystic Fibrosis
Information on Tobramycin Solution for Inhalation (TOBI) for pseudomonas infection, by pharmaceutical agency.
Ambry Genetics
Testing for CF mutations. Offers a comprehensive screening of CF mutations, plus Poly T Variant analysis, and direct DNA sequencing of exon.
Billy Cook battled cystic fibrosis and died. The site generates funding for patients of this deadly disease.
Cindy's Friends
Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.
Cute Petite Chic - A Cystic Fibrosis Web
Basic information with good description of sweat test, memorial page for a girl lost to CF at age 9, details of her last days and link to give in her memory through Great Strides.
Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
Cystic Fibrosis Research Inc.
News about CF research. Site also has a newsletter available.
Cystic Fibrosis Resource Centre
A source of information for cystic fibrosis patients, parents, doctors and other carers.
Cystic Fibrosis Services
A subsidiary of the Cystic Fibrosis Foundation and a national pharmacy that specializes in providing medications to individuals with cystic fibrosis (CF).
Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
Cystic fibrosis information and support, including a vibrant on-line community, via email, a Handbook of information and resources, photos of CFers, a CF Shop and bookstore.
Internet community for cystic fibrosis patients, families and loved ones.
Kate McCloughan Krzyzak
Obituary site.
Michigan Pulmonary Disease Community, Inc.
Organization dedicated to enhancing lives of children and mature with Cystic Fibrosis.
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
North American Cystic Fibrosis Conference in New Orleans
Information on program and location.
Providence Cystic Fibrosis Center
Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.
Dedicated research for a cure for cystic fibrosis.
The Breathing Room
Guidance about the art of living with cystic fibrosis.
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